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Channel: M.E. – Tanya Marlow – Thorns and Gold
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Paul, Prison and Paralympics

“…And then a light clicked on for me. I thought of the chains of my disability. I thought of Paul, imprisoned in his house, unable to preach the gospel openly. I thought of his goal to go to the far...

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Boots

Flicktone, on Flickr”> I scroll endlessly between the two options: dark green or dark grey? Which pair of boots will be better? (I really wanted patent black, but they didn’t have it). Grey will do....

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Not right now

I was going to write a (slightly overdue) supercool Blogoversary post. But I can’t do that right now.   At some point I shall probably write about my experience this week of being rushed to A and E...

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Again

“Can you please tell me how to get in touch with my local ME specialist? I know the files were being transferred to a new system last year, but I was meant to see him last March, and haven’t heard...

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What I’m into (January 2013)

I keep meaning to do a weekly Bits’n’Blogs post, and never getting round to it. And then I saw that the wonderful Leigh Kramer does a monthly ‘what I’m into’ post, and I thought that was a fab idea! So...

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Why this government is failing the disabled AND the taxpayer (DLA vs PIP)

I have seen a number of news items recently, including periodicals which should know better, saying something like this:   “Disability Living Allowance, the benefit that helps with the extra costs of...

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On M.E. and Silence (M.E. awareness week 2013)

Last week I went on an Internet fast. It was meant to be like a silent retreat so I could focus on writing, away from the many voices on social media. I was looking forward to working on my M.E. book,...

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What I’m into (May 2013)

The wonderful Leigh Kramer does a monthly ‘what I’m into’ post, and I thought that was a fab idea! So I’m linking up with her, and do take a while to look round her blog- she’s one of the nicest people...

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On the occasion of my MP coming to visit me

  “After the king burned the scroll containing the words that Baruch had written at Jeremiah’s dictation, the word of the Lord came to Jeremiah: “Take another scroll and write on it all the words that...

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Cocooning

For the past few days, I’ve been waking up thinking, ‘maybe I’ll write today’, but then I haven’t been able to. That’s partly because I have been resting after Christmas (BOO), (Christmas always seems...

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Ten Years of severe Myalgic Encephalomyelitis – #tenforjen

Jenny Rowbory, in 2008 Who is your hero? Jenny Rowbory is mine.   This is a special blog post to mark ten years of my friend Jenny Rowbory being bedbound with severe M.E. In 2004, she had 4 As at A...

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Potential biomarker for Myalgic Encephalomyelitis

Photo Credit: Wellcome Images Good news in ME research is like buses – none for decades, then lots at once. On Friday the news broke: a study has been published by some of the best names in worldwide...

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ME Awareness Day 2015

The two faces of ME: the one you don’t see   I was fully intending to write something big and inspiring for ME Awareness Day this year – but, ironically enough, my health is stopping me. Today I am...

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Can exercise and positivity overcome M.E. / CFS? A look at the evidence

Whitney Dafoe, severe ME sufferer. Photo ? ME Action Net This week, the Telegraph had a front page article claiming a new study showed that exercise and positivity can cure M.E. This was a very...

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I’m in an ME awareness mini-documentary (Change for M.E. Campaign)

Drumroll…I’m in a mini-documentary! The Campaign Back in October, L.A. Cooper got in touch with me on behalf of the Change for ME campaign to interview me for a short film (just 35 minutes). The aim...

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What I’m Into (October 2015)

Date by the sea October was a crazy-busy month: I wrote a little, read a lot, I was filmed for a documentary, and I pushed myself harder than I have in a long while.   The weather was still pretending...

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ME is not exercise phobia, it’s a physical illness

“Enter Spectator writer Rod Liddle, who’s baffled by ME patients wanting better treatment than this… With a strange logic, he asserts that because ME patients deny that they have a psychiatric...

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Video – Interview – Exeter

  If you follow me on social media, you’ll know that I was recently invited to speak at Belmont Chapel, Exeter. I said, ‘Sorry, I’m housebound’; they said, ‘Then we’ll come to you.’ So the church...

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PACE trial debunked, #millionsmissing, Esther Crawley and FITNET – an ME news...

There has been so much ME news over the past few months – the PACE trial scandal, #MillionsMissing protests all over the world, and Esther Crawley’s proposed research splashed all over the papers as a...

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